FamiliesResearch Clinical trial update from Takeda Since the announcement that the phase 2 trial with TAK-611 for children with Metachromatic Leukodystrophy…MLD adminMarch 20, 2024
FamiliesResearch A Rare Find: The Newborn Screening Collaborative comedy short The UK currently screens newborns for just nine rare but serious conditions whereas the USA…MLD adminDecember 4, 2023
FamiliesResearch A Rare Find: Comedy short wants to create conversation around newborn screening The UK currently screens newborns for just 9 rare but serious conditions whereas the USA…MLD adminNovember 22, 2023
FamiliesSupport Autumn Family Fun Day Thanks to the National Lottery, we are delighted to confirm that the next MLD Family…MLD adminSeptember 13, 2022
FamiliesSupport Working with The MPS Society MLD Support Association UK is a small charity with limited resources, so we value working…MLD adminJuly 22, 2022
FamiliesSupport Announcing Family Fun Day at Drayton Manor Resort Thanks to National Lottery funding the MLD Support Association UK Funday will take place on…MLD adminJanuary 26, 2022
FamiliesSupport Christmas party announcement Great News! We will be holding a virtual Christmas Party on Saturday 11th December 1pm-2pm…MLD adminNovember 1, 2021
FamiliesFundraisingSupport Christmas party 2021 Great News! We have secured funding from the National Lottery Community Fund to hold a…MLD adminJuly 30, 2021
FamiliesResearch MLD UK registry news Following long discussions around the current worldwide status of Registries for MLD and because of…MLD adminJuly 12, 2021
FamiliesResearch Treating early onset MLD We are pleased to report Orchard Therapeutics has received EC full (standard) market approval for…MLD adminDecember 21, 2020