Contact

Our office address is not fully manned, and is used specifically for receiving mail. If you have any enquiry, it should be sent in the first instance via our ‘Contact’ form below. The telephone numbers are used mainly for making meeting arrangements, or for official activities and administration business.

General information

We will endeavour to answer any general enquires by e-mail to the sender. Because we are a small charity with no administrative employees, we are unable to guarantee an immediate response, but will definitely reply to your enquiry as quickly as we can. Most information regarding our organisation will be found on the pages of this website, or via the links we have provided to other organisations.

 

Questions regarding problems being experienced with the difficulties related to MLD

We will generally display these on the ‘Support’ page after allocating a ‘pen name’. If we are able to provide a response from our own, or collective, experience, that will be displayed also. If necessary, we will contact others who have a greater knowledge for advice.

 

MLD Support Association UK
Floor 5
Amphenol Business Complex
Thanet Way
Whitstable
CT5 3SB

Email: admin@mldsupportuk.org.uk

About us

MLD Support Association UK was set up to bring hope to families in the fight to eradicate Metachromatic Leukodystrophy (MLD). Our aim is to provide support by way of shared information from people in similar circumstances who have already experienced the effects of the condition and/or any treatments available.

MLD Support Association UK

MLD Support Association UK is a
Registered Charity Number 1150542

Patrons
Professor Timothy M Cox, MD, FRCP, FMedSci
Suzi Digby (Lady Eatwell) OBE
Iain Stewart MP

Contact

MLD Support Association UK
Floor 5
Amphenol Business Complex
Thanet Way
Whitstable
CT5 3SB

Tel: 07977 440809
admin@mldsupportuk.org.uk