MLD help and support for families and sufferers


Are you, a member of your family or a friend suffering from Metachromatic Leukodystrophy (MLD)? If you are then we are here to offer you help, information and support. We are an information website set up by two parents who have children with MLD and have been through your journey. Dealing with MLD is difficult and can be very lonely as it is such a rare disease, so please do not hesitate to Contact Us with any questions you have or information you need.

We have produced a leaflet Living with MLD to provide information on MLD (Metachromatic Leukodystrophy) for families affected by this disease.

About us

MLD Support Association UK was set up to bring hope to families in the fight to eradicate Metachromatic Leukodystrophy (MLD). Our aim is to provide support by way of shared information from people in similar circumstances who have already experienced the effects of the condition and/or any treatments available.

MLD Support Association UK

MLD Support Association UK is a
Registered Charity Number 1150542

Professor Timothy M Cox, MD, FRCP, FMedSci
Suzi Digby (Lady Eatwell) OBE
Iain Stewart MP


MLD Support Association UK
Floor 5
Amphenol Business Complex
Thanet Way

Tel: 07977 440809