MLD help and support

Health Professionals

If you are a health professional dealing with a case of Metachromatic Leukodystrophy (MLD) then we can offer information on the disease, details of palliative and therapeutic care and contacts to specialists in the field. Please Contact Us with your questions and we will endeavour to put you in touch with the relevant specialists.

We have produced a leaflet Understanding MLD to provide information on MLD (Metachromatic Leukodystrophy) for Schools, Nurseries, Paediatric Clinics and GP Surgeries.


About us

MLD Support Association UK was set up to bring hope to families in the fight to eradicate Metachromatic Leukodystrophy (MLD). Our aim is to provide support by way of shared information from people in similar circumstances who have already experienced the effects of the condition and/or any treatments available.

MLD Support Association UK

MLD Support Association UK is a
Registered Charity Number 1150542

Professor Timothy M Cox, MD, FRCP, FMedSci
Suzi Digby (Lady Eatwell) OBE
Iain Stewart MP


MLD Support Association UK
Floor 5
Amphenol Business Complex
Thanet Way

Tel: 07977 440809