MLD Support Association UK – Family Conference 2018

The second MLD Support Association UK Family Conference will be held at Wyboston Lakes in St. Neots on Saturday 9 June 2018.

The focus this year will be on Support and Care of MLD sufferers and their families, and will enable families directly affected by MLD to meet and share valuable information. There will be presentations on support and care, as well as an update on current and future research, followed by family discussions, and networking sessions. A crèche for children and affected adults will again be provided. Dinner on Saturday evening will be followed by free time for families to mix.

We are delighted that Dr. Anupam Chakrapani, Consultant in Paediatric Metabolic Medicine at Great Ormond Street Hospital will again join us as well as Dr Ming Lim, Consultant Paediatric Neurologist at the Evelina Children’s Hospital. Also attending will be Carol Hall of L’Arche Kent, a Community with a wide experience of supporting young people with Learning Difficulties. Other experts in the field of MLD/Leukodystrophies will also give presentations.

For further information please contact vivienne@mldsupportuk.org.uk
 
MLD Support Association UK Family Conference
 
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About us

MLD Support Association UK was set up to bring hope to families in the fight to eradicate Metachromatic Leukodystrophy (MLD). Our aim is to provide support by way of shared information from people in similar circumstances who have already experienced the effects of the condition and/or any treatments available.

MLD Support Association UK

MLD Support Association UK is a
Registered Charity Number 1150542

Patrons
Professor Timothy M Cox, MD, FRCP, FMedSci
Suzi Digby (Lady Eatwell) OBE
Iain Stewart MP

Contact

MLD Support Association UK
Floor 5
Amphenol Business Complex
Thanet Way
Whitstable
CT5 3SB

Tel: 07977 440809
admin@mldsupportuk.org.uk