MLD Support Association UK — Scientific and Family Conference

8-9 June 2018 at Wyboston Lakes, St Neots.

Another very successful Conference with thanks to all the scientists, clinicians and families who attended. We will be posting further details of the talks shortly.
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Vivienne Clark, Chair – MLD Support Association UK
 

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Prof Simon Heales – Head of Laboratory Services at GOSH
 
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Dr Anupam Chakrapani – Consultant in Paediatric Metabolic Medicine at GOSH, Bob Stott – Trustee and Dr David Begley – Vice-President and Scientific Director Brains for Brain Foundation
 
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Dr Robin Lachmann – Consultant in Metabolic Medicine, UCLH
 
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Dr Simon Burke – Lead Health scientist – Enzyme Laboratory at GOSH
 
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Prof Tim Cox – Emiritus Professor of Medicine, University of Cambridge. Patron of MLD Support Association UK and Dr Germaine Pierre – Paediatric Consultant at University Hospitals Bristol
 
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Dr Ming Lim – Consultant Paediatric Consultant at Evalina Children’s Hospital London
 
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Scott Clark – MLD survivor, Ismayil Nur, Carol Hall and Tuuliki Rumbas – L’Arche Kent
 
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Dr John Livingstone – Leeds University Teaching Hospital
 
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Dr Germaine Pierre – Paediatric consultant at University Hospitals, Bristol
 
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Dr Christine I Dali – Paediatric specialist involved in trials of Enzyme Replacement Therapy in Denmark
 
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Prof Tim Cox – Emiritus Professor of Medicine, University of Cambridge. Patron of MLD Support Association UK
 
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L’Arche Kent presentation
 
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Jackie Imrie – Health Care Consultant and Genetic Counsellor, Trustee of MLD Support Association UK

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About us

MLD Support Association UK was set up to bring hope to families in the fight to eradicate Metachromatic Leukodystrophy (MLD). Our aim is to provide support by way of shared information from people in similar circumstances who have already experienced the effects of the condition and/or any treatments available.

MLD Support Association UK

MLD Support Association UK is a
Registered Charity Number 1150542

Patrons
Professor Timothy M Cox, MD, FRCP, FMedSci
Suzi Digby (Lady Eatwell) OBE
Iain Stewart MP

Contact

MLD Support Association UK
Floor 5
Amphenol Business Complex
Thanet Way
Whitstable
CT5 3SB

Tel: 07977 440809
admin@mldsupportuk.org.uk