MLD Support Association UK https://validator.w3.org/feed/docs/rss2.html Christmas care packages Conference 2023 Our team Conference 2025 Farewell Vivienne The Connie Elson MLD Essay Prize 2025 About MLD A Rare Find: The Newborn Screening Collaborative comedy short Government consultation opens on newborn screening for MLD Family activity weekend in the Lake District About us Contact Our weekend away at Bendrigg Trust activity centre Clinicians MLD Scientific and Family Conference 2025 SSIEM 2024 Clinical trial update from Takeda Donate Orchard Therapeutics celebrates progress in advancing newborn screening for MLD on International Neonatal Screening Day Fundraise for us Genomics England includes MLD on its provisional list A Rare Find: Comedy short wants to create conversation around newborn screening Keeping in touch Festive Packages NICE final guidance approves life-changing gene therapy for treating Metachromatic Leukodystrophy (MLD) Gene Therapy Study for Late Juvenile Metachromatic Leukodystrophy (LJ MLD) Can you spare your time and talent? Autumn Family Fun Day Archangel launches collaborative newborn screening campaign Niamh’s Skydive for MLD Sally Tooms completes the London Marathon Newborn Screening for MLD Update Working with The MPS Society Sally on the tele running the London Marathon Conference 2018 Scientific and Family Conference Agenda Family Conference Abseiling the ArclorMittal Orbit Making a leap for rare diseases COVID-19 update on shielding guidance Zoom Meeting for MLD Families Early Intervention Home Get involved Glossary The Survey to understand the MLD patient and care-giver experience is now live Lottery funding secured for care packages Support us with Amazon Smile Announcing Family Fun Day at Drayton Manor Resort News