MLD Support Association UK Family Conference – Saturday 20 June 2020

The third MLD Support Association UK Family Conference will be held at The Holiday Inn in Telford on Saturday 20 June 2020.

The focus this year will be on Support, Care and Therapies for MLD sufferers. There will be presentations, followed by family discussions and networking sessions. An all-day crèche for children will be provided. There will be a cocktail reception on Saturday evening, followed by dinner. There will then be free time for families to mix. We are subsidising the costs, so prices to attend are lower and we very much hope you can join us.

Dr. Anupam Chakrapani, Consultant in Paediatric Metabolic Medicine at Great Ormond Street Hospital will be attending. Also attending will be Dr Ming Lim, Consultant Paediatric Consultant at Evalina Children’s Hospital London and Prof Simon Heales, Head of Service for Laboratory Medicine at Great Ormond Street Hospital. Other experts in the field of MLD/Leukodystrophies and those caring for sufferers and supporting families will also give presentations. The Pharmaceutical companies will present up-to-date information on Gene Therapy and Enzyme Replacement Therapy

Option 1
2 Nights: Friday Night – Dinner, bed and breakfast. Conference including lunch and dinner. Saturday night bed and breakfast accommodation

Twin Room
£100 per person

Accessible Room:
£100 per person

Children 6 – 12
£30

Children 13-16
£40

Option 2
1 Night: Conference including lunch and dinner, Saturday night bed and breakfast accommodation

Twin Room:
£60

Accessible Room:
£60

Children 6 – 14
£15

Children 13-16
£20

NOTE: Children aged 5 and under and tube-fed children are free of charge.
Twin Rooms contain 2 x double beds. Accessible rooms 1 x double bed, but adjoining rooms are available.

All prices quoted are per person. If you have any queries, please contact: Vivienne Clark on 07977 440809.

Please make payment in full to:
MLD Support Association UK
Bank: HSBC
Sort Code: 40-33-33
Account Number: 52361361

Booking request form

To enable us to confirm the accommodation requirements with The Holiday Inn, can you please fill in the following fields which lets us know the day you will be arriving and leaving, the number of adults and children (and age of children) attending and how many rooms you need.

NOTE: Twin Rooms contain 2 x double beds. Accessible rooms contain 1 x double bed, but an adjoining room will be provided as well, if required.