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MLD Support Association UK getting involved

Get involved

MLD (Metachromatic Leukodystrophy) is a rare genetic condition, but when it strikes it brings devastation to the entire family. Because it is rare, many health professionals will have little experience of either the symptoms or the progression of the disease. We can help affected families in the UK by making them aware of the experience of other families and alert them to the likely progress of the disease and its effect on family members. Our aim is to support all affected families in the UK, and to provide information to health professionals.

Make a donation

We urgently need donations so that we can support families and also help to find more treatments for MLD. Read on…

Fundraise for us

Are you planning a sponsored walk, run, swim, cycle ride, quiz, karaoke or golf day? Read on…

Volunteer your expertise

The workload of a voluntary organisation is heavy and we need as much help as possible. There are many ways in which you could help us – perhaps you have a special skill which could help us promote the charity and help raise funds. If you are looking to volunteer, please contact us at

MLD Support Association UK Legacy

Leave a legacy

If you have or someone you know has been touched by MLD, perhaps you would like to remember us in your Will – please get in touch about legacies at