Following the wonderful news that Gene Therapy was approved for use in England by the…
MLD adminFebruary 22, 2022
Thanks to National Lottery funding the MLD Support Association UK Funday will take place on…
MLD adminJanuary 26, 2022
A formal application to add Metachromatic Leukodystrophy to the UK Newborn Bloodspot (NBS) programme has…
MLD adminDecember 9, 2021
Great News! We will be holding a virtual Christmas Party on Saturday 11th December 1pm-2pm…
MLD adminNovember 1, 2021
AmazonSmile is a really simple way for you to support MLD Support Association UK every time…
MLD adminAugust 31, 2021
Great News! We have secured funding from the National Lottery Community Fund to hold a…
MLD adminJuly 30, 2021
NICE (National Institute of Clinical Excellence) the drug decision making body have publicly released their…
MLD adminJuly 14, 2021
Following long discussions around the current worldwide status of Registries for MLD and because of…
MLD adminJuly 12, 2021
For people with MLD, the British Inherited Metabolic Disease Group (BIMDG), has stated that either…
MLD adminJanuary 22, 2021