This is where families and carers can access the MLD Registry Questionnaire. Before participating, please ensure you have familiarised yourself with all of the information and have completed the consent form most applicable.
If you would like further information or a paper copy of the Consent Form and Registry Questionnaire sent to you, please email firstname.lastname@example.org
Once you have completed the Consent Form, you will be sent a password to participate in the Patient Registry Questionnaire below. The average times this takes is just under 20 minutes and to make the process as smooth as possible, we recommend you have the patient’s medical and drug records to hand.Begin Questionnaire