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Scientific Conference

By June 11, 2018January 27th, 2022All, Research

On Friday 8 June 2018, we held our second Scientific Conference at Wyboston Lakes in St. Neots. We had over 25 scientists and clinicians in attendance, with and Dr. Anupam Chakrapani, Consultant in Paediatric Metabolic Medicine at Great Ormond Street Hospital chairing the Conference. The Conference offers a unique opportunity for clinicians and scientists for various disciplines to meet up, both formally and informally, and hear about current research and new treatments. Speakers included Dr David Begley, from Kings College and the Brains for Brain Foundation, Dr Robin Lackman who talked about Leukodstropies in Adults, Dr Christine I Dali MD, paediatric specialist involved in Clinical trials in Denmark for Enzyme Replacement Therapy, Professor Timothy Cox, Emeritus Professor of Medicine, University of Cambridge, and many other experts in the field of MLD/Leukodystrophies, as well as those caring for sufferers and supporting families. For more details and conference notes.

Our next Conference is in 2020. If you are a health professional and would like to attend this Conference, please contact us at