FamiliesSupport Announcing Family Fun Day at Drayton Manor Resort Thanks to National Lottery funding the MLD Support Association UK Funday will take place on…MLD adminJanuary 26, 2022
FamiliesSupport Christmas party announcement Great News! We will be holding a virtual Christmas Party on Saturday 11th December 1pm-2pm…MLD adminNovember 1, 2021
FamiliesFundraisingSupport Christmas party 2021 Great News! We have secured funding from the National Lottery Community Fund to hold a…MLD adminJuly 30, 2021
FamiliesResearch MLD UK registry news Following long discussions around the current worldwide status of Registries for MLD and because of…MLD adminJuly 12, 2021
FamiliesResearch Treating early onset MLD We are pleased to report Orchard Therapeutics has received EC full (standard) market approval for…MLD adminDecember 21, 2020
FamiliesSupport Lottery funding secured for care packages Exciting news! Funding from the Coronavirus Community Support Fund, distributed by The National Lottery Community…MLD adminSeptember 15, 2020
FamiliesResearch The Survey to understand the MLD patient and care-giver experience is now live This research is extremely important for us to gather, so we can ensure that regulatory…MLD adminAugust 28, 2020
FamiliesSupportUncategorized Zoom Meeting for MLD Families Friday 10 July at 11.30am It has been a very tough few months for all…MLD adminJuly 2, 2020
FamiliesSupport COVID-19 update on shielding guidance With the risk of catching coronavirus steadily decreasing, the UK Government announced changes to the…MLD adminJune 25, 2020
AllFamiliesSupport Family Fun Day at Wicksteed Park Saturday 7 September dawned mild and partly sunny. It was a perfect day for the…MLD adminSeptember 18, 2019