FamiliesResearch Treating early onset MLD We are pleased to report Orchard Therapeutics has received EC full (standard) market approval for…MLD adminDecember 21, 2020
FamiliesSupport Lottery funding secured for care packages Exciting news! Funding from the Coronavirus Community Support Fund, distributed by The National Lottery Community…MLD adminSeptember 15, 2020
FamiliesResearch The Survey to understand the MLD patient and care-giver experience is now live This research is extremely important for us to gather, so we can ensure that regulatory…MLD adminAugust 28, 2020
FamiliesSupportUncategorized Zoom Meeting for MLD Families Friday 10 July at 11.30am It has been a very tough few months for all…MLD adminJuly 2, 2020
FamiliesSupport COVID-19 update on shielding guidance With the risk of catching coronavirus steadily decreasing, the UK Government announced changes to the…MLD adminJune 25, 2020
AllFamiliesSupport Family Fun Day at Wicksteed Park Saturday 7 September dawned mild and partly sunny. It was a perfect day for the…MLD adminSeptember 18, 2019
AllFamilies Children in Need BBC’s Children in Need told the story of Joe and Connie Elson, two children who…MLD adminNovember 20, 2018
AllFamiliesResearch Family Conference The second MLD Support Association UK Family Conference was held at Wyboston Lakes in St.…MLD adminJune 12, 2018