We are delighted to announce that Atidarsagene autotemcel (Libmeldy®) has been recommended as an option…
MLD adminFebruary 4, 2022
NICE (National Institute of Clinical Excellence) the drug decision making body have publicly released their…
MLD adminJuly 14, 2021
Following long discussions around the current worldwide status of Registries for MLD and because of…
MLD adminJuly 12, 2021
We are pleased to report Orchard Therapeutics has received EC full (standard) market approval for…
MLD adminDecember 21, 2020
This research is extremely important for us to gather, so we can ensure that regulatory…
MLD adminAugust 28, 2020
Metachromatic Leukodystrophy (MLD) is classified as a Rare Disease There are over 300 million people…
MLD adminFebruary 27, 2020
A new Clinical Trial has been announced by Shire (now part of Takeda Pharmaceutical Company…
MLD adminDecember 14, 2018
The second MLD Support Association UK Family Conference was held at Wyboston Lakes in St.…
MLD adminJune 12, 2018
On Friday 8 June 2018, we held our second Scientific Conference at Wyboston Lakes in…
MLD adminJune 11, 2018