MLD Support Association UK is a small charity with limited resources, so we value working with The MPS Society, who offer specialist support for families affected by MLD. The rarity of MLD means that affected individuals and their families often experience difficulties accessing local support services.
Donna at The MPS Society (pictured) is an experienced Support & Advocacy Officer and works closely with families (within the UK) and associated professionals in health, social care, and education to ensure appropriate support is in place. The MPS Society operate a telephone helpline service offering emotional and practical support, providing information, guidance, and support to access disability benefits, and to navigate education, health care, and social care systems.
The Helpline number is 0345 389 9901 and is available Monday-Friday, 9am-5pm. For further information on The MPS Society, see their website.