Skip to main content

Family Conference

By June 12, 2018January 31st, 2022All, Families, Research
Dr Christine I Dali, MLD Support Association UK family conference
Dr Germaine Pierre – Paediatric consultant at University Hospitals, Bristol

The second MLD Support Association UK Family Conference was held at Wyboston Lakes in St. Neots on Saturday 9 June 2018. The focus this year was on Support and Care of MLD sufferers and their families, and enabled families directly affected by MLD to meet and share valuable information.  There were presentations on support and care, as well as an update on research, followed by family discussions, and networking sessions. A crèche for children and affected adults was again provided.  Dinner on Saturday evening was followed by free time for families to mix.

Speakers included Professor Timothy Cox, Emeritus Professor of Medicine, University of Cambridge, and also our Patron, and Dr. Anupam Chakrapani, Consultant in Paediatric Metabolic Medicine at Great Ormond Street Hospital chaired the Conference.  Also attending was Dr David Begley, from Kings College and the Brains for Brain Foundation.  Other experts in the field of MLD/Leukodystrophies and those caring for sufferers and supporting families also gave presentations.