MLD Support Association UK
  • About MLD
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  • About MLD
    • Treatment
    • Connie and Joe’s story
    • Camilla’s story
    • Millie’s story
    • Abbie’s story
    • Scott’s Story
    • Glossary
    • Useful links
  • About us
    • Our team
    • Conferences
  • MLD registry
  • Clinicians
  • Get involved
    • Donate
    • Fundraise for us
  • News
  • Contact
AllFundraising

Celebrating National Lottery Community Funding

We are delighted to announce we have been awarded a National Lottery Community grant of…
MLD admin
MLD adminJune 6, 2019
AllFundraising

Andrew Hudson learns of MLD sufferer and decides to support our work

Andrew Hudson recently learnt about a young man suffering from MLD and realised just how…
MLD admin
MLD adminMarch 18, 2019
AllFundraising

Paul Warrington is running the London Marathon in 2019

Paul Warrington has known Scott Clark (sufferer of Adult-Onset MLD) for over 25 years. He is…
MLD admin
MLD adminJanuary 28, 2019
AllResearch

A Study of Intrathecal SHP611 in Participants with Late Infantile MLD

A new Clinical Trial has been announced by Shire (now part of Takeda Pharmaceutical Company…
MLD admin
MLD adminDecember 14, 2018
AllFamilies

Children in Need

BBC’s Children in Need told the story of Joe and Connie Elson, two children who…
MLD admin
MLD adminNovember 20, 2018
AllFamiliesResearch

Family Conference

The second MLD Support Association UK Family Conference was held at Wyboston Lakes in St.…
MLD admin
MLD adminJune 12, 2018
AllResearch

Scientific Conference

On Friday 8 June 2018, we held our second Scientific Conference at Wyboston Lakes in…
MLD admin
MLD adminJune 11, 2018
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Categories

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  • Families
  • Fundraising
  • Research
  • Support
  • Uncategorized

Recent Posts

  • COVID-19 vaccinations for people with MLD
  • Treating early onset MLD
  • Lottery funding secured for care packages
  • The Survey to understand the MLD patient and care-giver experience is now live
  • Zoom Meeting for MLD Families

Archives

  • January 2021
  • December 2020
  • September 2020
  • August 2020
  • July 2020
  • June 2020
  • February 2020
  • September 2019
  • June 2019
  • March 2019
  • January 2019
  • December 2018
  • November 2018
  • June 2018

Tags

BBC Children in Need Enzyme Replacement Therapy Families Family Conference Fundraising Late Infantile MLD London Marathon Metachromatic Leukodystrophy MLD Patient Registry Research Scientific Conference Takeda

About Us

MLD Support Association UK was set up to bring hope to families in the fight to eradicate Metachromatic Leukodystrophy (MLD). Our aim is to provide support by way of shared information from people in similar circumstances who have already experienced the effects of the condition and/or any new research and treatments available.

Contact Us

MLD Support Association UK
Floor 5
Amphenol Business Complex
Thanet Way
Whitstable
CT5 3SB
Tel: 07977 440809
admin@mldsupportuk.org.uk

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Patrons

Professor Timothy M Cox,
MD, FRCP, FMedSci
Suzi Digby (Lady Eatwell) OBE
Iain Stewart MP

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Tags

BBC Children in Need Enzyme Replacement Therapy Families Family Conference Fundraising Late Infantile MLD London Marathon Metachromatic Leukodystrophy MLD Patient Registry Research Scientific Conference Takeda

MLD Support Association UK is a registered Charity: 115054