FamiliesSupport Working with The MPS Society MLD Support Association UK is a small charity with limited resources, so we value working…MLD adminJuly 22, 2022
Research Gene Therapy Study for Late Juvenile Metachromatic Leukodystrophy (LJ MLD) Following the wonderful news that Gene Therapy was approved for use in England by the…MLD adminFebruary 22, 2022
Research NICE final guidance approves life-changing gene therapy for treating Metachromatic Leukodystrophy (MLD) We are delighted to announce that Atidarsagene autotemcel (Libmeldy®) has been recommended as an option…MLD adminFebruary 4, 2022
FamiliesSupport Announcing Family Fun Day at Drayton Manor Resort Thanks to National Lottery funding the MLD Support Association UK Funday will take place on…MLD adminJanuary 26, 2022
Research Newborn Screening for MLD Update A formal application to add Metachromatic Leukodystrophy to the UK Newborn Bloodspot (NBS) programme has…MLD adminDecember 9, 2021
FamiliesSupport Christmas party announcement Great News! We will be holding a virtual Christmas Party on Saturday 11th December 1pm-2pm…MLD adminNovember 1, 2021
Fundraising Support us with Amazon Smile AmazonSmile is a really simple way for you to support MLD Support Association UK every time…MLD adminAugust 31, 2021
FamiliesFundraisingSupport Christmas party 2021 Great News! We have secured funding from the National Lottery Community Fund to hold a…MLD adminJuly 30, 2021
Research Update on approval of gene therapy for MLD NICE (National Institute of Clinical Excellence) the drug decision making body have publicly released their…MLD adminJuly 14, 2021
FamiliesResearch MLD UK registry news Following long discussions around the current worldwide status of Registries for MLD and because of…MLD adminJuly 12, 2021