Uncategorized COVID-19 vaccinations for people with MLD For people with MLD, the British Inherited Metabolic Disease Group (BIMDG), has stated that either…MLD adminJanuary 22, 2021
FamiliesResearch Treating early onset MLD We are pleased to report Orchard Therapeutics has received EC full (standard) market approval for…MLD adminDecember 21, 2020
FamiliesSupport Lottery funding secured for care packages Exciting news! Funding from the Coronavirus Community Support Fund, distributed by The National Lottery Community…MLD adminSeptember 15, 2020
FamiliesResearch The Survey to understand the MLD patient and care-giver experience is now live This research is extremely important for us to gather, so we can ensure that regulatory…MLD adminAugust 28, 2020
FamiliesSupportUncategorized Zoom Meeting for MLD Families Friday 10 July at 11.30am It has been a very tough few months for all…MLD adminJuly 2, 2020
FamiliesSupport COVID-19 update on shielding guidance With the risk of catching coronavirus steadily decreasing, the UK Government announced changes to the…MLD adminJune 25, 2020
AllFundraisingResearch Making a leap for rare diseases Metachromatic Leukodystrophy (MLD) is classified as a Rare Disease There are over 300 million people…MLD adminFebruary 27, 2020
AllFamiliesSupport Family Fun Day at Wicksteed Park Saturday 7 September dawned mild and partly sunny. It was a perfect day for the…MLD adminSeptember 18, 2019
AllFundraising Abseiling the ArclorMittal Orbit Keiren Martin completed his Abseiling challenge from the ArclorMittal Orbit in August 2019. He regularly…MLD adminSeptember 18, 2019
AllFundraising Celebrating National Lottery Community Funding We are delighted to announce we have been awarded a National Lottery Community grant of…MLD adminJune 6, 2019