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    A Study of Intrathecal SHP611 in Participants with Late Infantile MLD AllResearch

    A Study of Intrathecal SHP611 in Participants with Late Infantile MLD

    A new Clinical Trial has been announced by Shire (now part of Takeda Pharmaceutical Company…
    MLD admin
    MLD adminDecember 14, 2018
    Connie and Joe Elson
    Children in Need AllFamilies

    Children in Need

    BBC’s Children in Need told the story of Joe and Connie Elson, two children who…
    MLD admin
    MLD adminNovember 20, 2018
    Dr Christine I Dali, MLD Support Association UK family conference
    Family Conference AllFamiliesResearch

    Family Conference

    The second MLD Support Association UK Family Conference was held at Wyboston Lakes in St.…
    MLD admin
    MLD adminJune 12, 2018
    Scientific Conference AllResearch

    Scientific Conference

    On Friday 8 June 2018, we held our second Scientific Conference at Wyboston Lakes in…
    MLD admin
    MLD adminJune 11, 2018
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    BBC Children in Need Enzyme Replacement Therapy Families Family Conference Fundraising Late Infantile MLD London Marathon Metachromatic Leukodystrophy MLD Research Scientific Conference Takeda

    About Us

    MLD Support Association UK was set up to bring hope to families in the fight to eradicate Metachromatic Leukodystrophy (MLD). Our aim is to provide support by way of shared information from people in similar circumstances who have already experienced the effects of the condition and/or any new research and treatments available.

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    MLD Support Association UK
    1st floor
    35 Marine Terrace
    Margate
    Kent
    CT9 1XJ
    General Enquiries: 07414 529392
    Chairperson Vivienne Clark: 07977 440809
    Email: admin@mldsupportuk.org.uk

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    Professor Timothy M Cox,
    MD, FRCP, FMedSci
    Suzi Digby (Lady Eatwell) OBE
    Iain Stewart MP

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    BBC Children in Need Enzyme Replacement Therapy Families Family Conference Fundraising Late Infantile MLD London Marathon Metachromatic Leukodystrophy MLD Research Scientific Conference Takeda

    MLD Support Association UK is a registered Charity: 1150542

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    • About MLD
      • Treatment
      • Early Intervention
      • Connie and Joe’s story
      • Camilla’s story
      • Millie’s story
      • Abbie’s story
      • Scott’s Story
      • Glossary
      • Useful links
    • About us
      • Our team
      • Conference 2025
      • Conference 2023
      • Conference 2018
    • Clinicians
    • Get involved
      • Donate
      • Fundraise for us
    • News
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