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    Newborn Screening Collaborative Mum and Dad
    A Rare Find: The Newborn Screening Collaborative comedy short FamiliesResearch

    A Rare Find: The Newborn Screening Collaborative comedy short

    The UK currently screens newborns for just nine rare but serious conditions whereas the USA…
    MLD admin
    MLD adminDecember 4, 2023
    Newborn Screening Collaborative
    A Rare Find: Comedy short wants to create conversation around newborn screening FamiliesResearch

    A Rare Find: Comedy short wants to create conversation around newborn screening

    The UK currently screens newborns for just 9 rare but serious conditions whereas the USA…
    MLD admin
    MLD adminNovember 22, 2023
    Newborn Baby Genomics England
    Genomics England includes MLD on its provisional list Research

    Genomics England includes MLD on its provisional list

    The Generation Study, a project by Genomics England, will see the genomes of 100,000 newborns…
    MLD admin
    MLD adminOctober 4, 2023
    Sally Tooms London Marathon Medal running for MLD Support Association UK
    Sally Tooms completes the London Marathon Fundraising

    Sally Tooms completes the London Marathon

    Sally Tooms successfully ran the London Marathon for MLD Support Association UK.  She finished in…
    MLD admin
    MLD adminApril 26, 2023
    Sally Tooms MLD Support Association UK
    Sally on the tele running the London Marathon Fundraising

    Sally on the tele running the London Marathon

    Sally Tooms is running the London Marathon for MLD Support Association UK.  When she saw…
    MLD admin
    MLD adminApril 5, 2023
    Niamah Hitchman MLD Support Association UK
    Niamh’s Skydive for MLD Fundraising

    Niamh’s Skydive for MLD

    Niamh Hitchman is planning a Skydive to raise awareness of MLD and raise funds for…
    MLD admin
    MLD adminApril 5, 2023
    Newborn Screening
    Archangel launches collaborative newborn screening campaign Uncategorized

    Archangel launches collaborative newborn screening campaign

    The UK Newborn Screening programme desperately needs urgent revision to keep up with other Western…
    MLD admin
    MLD adminFebruary 14, 2023
    Family Fun Day MLD Support Association UK
    Autumn Family Fun Day FamiliesSupport

    Autumn Family Fun Day

    Thanks to the National Lottery, we are delighted to confirm that the next MLD Family…
    MLD admin
    MLD adminSeptember 13, 2022
    MLD Support Association UK Volunteers
    Can you spare your time and talent? FundraisingSupport

    Can you spare your time and talent?

    MLD Support Association UK is working hard to support families affected by MLD and to…
    MLD admin
    MLD adminJuly 22, 2022
    The MPS Society Logo
    Working with The MPS Society FamiliesSupport

    Working with The MPS Society

    MLD Support Association UK is a small charity with limited resources, so we value working…
    MLD admin
    MLD adminJuly 22, 2022
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    About Us

    MLD Support Association UK was set up to bring hope to families in the fight to eradicate Metachromatic Leukodystrophy (MLD). Our aim is to provide support by way of shared information from people in similar circumstances who have already experienced the effects of the condition and/or any new research and treatments available.

    Contact Us

    MLD Support Association UK
    1st floor
    35 Marine Terrace
    Margate
    Kent
    CT9 1XJ
    General Enquiries: 07414 529392
    Chairperson Vivienne Clark: 07977 440809
    Email: admin@mldsupportuk.org.uk

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    Professor Timothy M Cox,
    MD, FRCP, FMedSci
    Suzi Digby (Lady Eatwell) OBE
    Iain Stewart MP

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    BBC Children in Need Enzyme Replacement Therapy Families Family Conference Fundraising Late Infantile MLD London Marathon Metachromatic Leukodystrophy MLD Research Scientific Conference Takeda

    MLD Support Association UK is a registered Charity: 1150542

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    • About MLD
      • Treatment
      • Early Intervention
      • Connie and Joe’s story
      • Camilla’s story
      • Millie’s story
      • Abbie’s story
      • Scott’s Story
      • Glossary
      • Useful links
    • About us
      • Our team
      • Conference 2025
      • Conference 2023
      • Conference 2018
    • Clinicians
    • Get involved
      • Donate
      • Fundraise for us
    • News
    • Contact