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MLD Support Association UK
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    MLD Support Association UK Car Packages
    Lottery funding secured for care packages FamiliesSupport

    Lottery funding secured for care packages

    Exciting news! Funding from the Coronavirus Community Support Fund, distributed by The National Lottery Community…
    MLD admin
    MLD adminSeptember 15, 2020
    The Survey to understand the MLD patient and care-giver experience is now live FamiliesResearch

    The Survey to understand the MLD patient and care-giver experience is now live

    This research is extremely important for us to gather, so we can ensure that regulatory…
    MLD admin
    MLD adminAugust 28, 2020
    Zoom Meeting for MLD Families FamiliesSupportUncategorized

    Zoom Meeting for MLD Families

    Friday 10 July at 11.30am It has been a very tough few months for all…
    MLD admin
    MLD adminJuly 2, 2020
    MLD Support Association UK COVID-19
    COVID-19 update on shielding guidance FamiliesSupport

    COVID-19 update on shielding guidance

    With the risk of catching coronavirus steadily decreasing, the UK Government announced changes to the…
    MLD admin
    MLD adminJune 25, 2020
    Rare Disease Day 2020. MLD Support Association UK
    Making a leap for rare diseases AllFundraisingResearch

    Making a leap for rare diseases

    Metachromatic Leukodystrophy (MLD) is classified as a Rare Disease There are over 300 million people…
    MLD admin
    MLD adminFebruary 27, 2020
    MLD Support Association UK Family Fun Day 2019
    Family Fun Day at Wicksteed Park AllFamiliesSupport

    Family Fun Day at Wicksteed Park

    Saturday 7 September dawned mild and partly sunny. It was a perfect day for the…
    MLD admin
    MLD adminSeptember 18, 2019
    Abseiling the ArclorMittal Orbit AllFundraising

    Abseiling the ArclorMittal Orbit

    Keiren Martin completed his Abseiling challenge from the ArclorMittal Orbit in August 2019.  He regularly…
    MLD admin
    MLD adminSeptember 18, 2019
    Celebrating National Lottery Community Funding AllFundraising

    Celebrating National Lottery Community Funding

    We are delighted to announce we have been awarded a National Lottery Community grant of…
    MLD admin
    MLD adminJune 6, 2019
    Andrew Hudson Runner
    Andrew Hudson learns of MLD sufferer and decides to support our work AllFundraising

    Andrew Hudson learns of MLD sufferer and decides to support our work

    Andrew Hudson recently learnt about a young man suffering from MLD and realised just how…
    MLD admin
    MLD adminMarch 18, 2019
    Paul Warrington Twickenham Runner
    Paul Warrington is running the London Marathon in 2019 AllFundraising

    Paul Warrington is running the London Marathon in 2019

    Paul Warrington has known Scott Clark (sufferer of Adult-Onset MLD) for over 25 years. He is…
    MLD admin
    MLD adminJanuary 28, 2019
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    About Us

    MLD Support Association UK was set up to bring hope to families in the fight to eradicate Metachromatic Leukodystrophy (MLD). Our aim is to provide support by way of shared information from people in similar circumstances who have already experienced the effects of the condition and/or any new research and treatments available.

    Contact Us

    MLD Support Association UK
    1st floor
    35 Marine Terrace
    Margate
    Kent
    CT9 1XJ
    General Enquiries: 07414 529392
    Chairperson Vivienne Clark: 07977 440809
    Email: admin@mldsupportuk.org.uk

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    Patrons

    Professor Timothy M Cox,
    MD, FRCP, FMedSci
    Suzi Digby (Lady Eatwell) OBE
    Iain Stewart MP

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    BBC Children in Need Enzyme Replacement Therapy Families Family Conference Fundraising Late Infantile MLD London Marathon Metachromatic Leukodystrophy MLD Research Scientific Conference Takeda

    MLD Support Association UK is a registered Charity: 1150542

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    • About MLD
      • Treatment
      • Early Intervention
      • Connie and Joe’s story
      • Camilla’s story
      • Millie’s story
      • Abbie’s story
      • Scott’s Story
      • Glossary
      • Useful links
    • About us
      • Our team
      • Conference 2025
      • Conference 2023
      • Conference 2018
    • Clinicians
    • Get involved
      • Donate
      • Fundraise for us
    • News
    • Contact